'Our baby never crawled - she's one of just 150 in the world with untreatable disease'
Mila's parents described the 'earth-shattering' moment when they were told that their daughter had a life expectancy of just five to 10 years due to a rare nervous system disease
Mila's parents described the 'earth-shattering' moment when they were told that their daughter had a life expectancy of just five to 10 years due to a rare nervous system disease
